Tuesday, September 4, 2012 - 7th day following the PA band surgery
Diego did not sleep well last night. He was awake sitting up in the bed a lot complaining that he was hot. Yesterday evening, he developed a rash on his lower back; most likely from the heat and moisture of being in the bed. During the night, the rash was irritating him so he was unable to sleep well.
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| Leaving the Hospital |
Diego was relieved to be able to take a shower this morning. Afterwards, the ultrasound tech came in to do his echo around 9:00am. It was approximately 2:30 when Dr. Marx and the nurse came in to see Diego. Dr. Marx, the cardiologist, was very pleased with Diego’s echo. He is optimistic that Diego’s left ventricle will be prepared for the Double Switch surgery within 1 year. Diego will be seen by the cardiologist in Tulsa routinely for checkups to monitor the left ventricle. Once the cardiologists feel the left ventricle is ready for the anatomical repair then we will return to Boston for the Double Switch operation. We estimate that this will be sometime during the summer of 2013.
By 4:00pm Diego was officially discharged from Children's Hospital Boston. We will need to remain in Boston for a few more days to ensure that Diego is ready to fly home. Diego will be seen by the doctor for one last echo on Friday then we will return home over the weekend.
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